Monday, May 4, 2009

Understanding Adrenoleukodystrophy (ALD)

Adrenoleukodystrophy is a rare inherited disorder that leads to progressive adrenal failure and brain damage. This disease/disorder was discovered in 1993. The symptoms of this disorder/disease is: seizures, degeneration of visual and auditory function, ataxia, Addison's disease progressive stiffness and neurological abilities. Approximately 1 in 20,000 boys are diagnosed with Adrenoleukodystrophy. The treatments for this disease is dietary treatments but there is currently no cure. This disease is not common in the united states or the world due to to the fact its a rare disease. Approximately 1 in 20,000 boys are diagnosed with ALD. Clinical trials are currently in progress to see if the proposed treatments were successful. Death occurs within one to ten years of presentation of symptoms. In summation Adrenoleukodystrophy is a hard painful disease to live with it is a rare and hard to understand disease that some people suffer from every day.

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